UK Links
Muscular Dystrophy UK – www.musculardystrophyuk.org
Neuromuscular Centre – www.nmcentre.com
Neuromuscular Centre – Coventry http://nmc-midlands.co.uk/
Expert Patient Program – www.expertpatients.co.uk
Treat MND, Neuromuscular Network – www.fshd-group.eu
Direct.gov, Disabled People – www.direct.gov.uk
Carers UK – www.carersuk.org
Equality and Human Rights Commission – www.equalityhumanrights.com
Motability – www.motability.co.uk
Mobilise – www.mobilise.org
Murray’s Muscles – www.murraysmuscles.co.uk
NHS Direct – www.nhsdirect.nhs.uk
Disabled Living Foundation – www.dlf.org.uk
Genetic Alliance UK – www.geneticalliance.org.uk
Non UK Links
FSH Society (USA) – www.fshsociety.org
FSH Friends – www.fshfriends.org
Fields FSHD and Neuromuscular Centre – www.urmc.rochester.edu
FSHD Europe – groupefsh.free.fr
Muscular Dystrophy Australia – www.mda.org.au
Neuromuscular Disease Centre – neuromuscular.wustl.edu
European Neuromuscular Centre – www.enmc.org
Rare Disease Search Engine – www.raredisease.org
Evidence-based guideline summary:
Evaluation, diagnosis, and management of facioscapulohumeral muscular dystrophy
Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology and the Practice Issues Review Panel of the American Association of Neuromuscular & Electrodiagnostic Medicine
http://www.neurology.org/content/85/4/357.full.pdf+html
Exercise advice for those with muscle wasting conditions produced by Muscular Dystrophy UK
http://www.musculardystrophyuk.org/app/uploads/2015/05/Exercise-advice-for-adults.pdf
