Here’s Luca taking his first dose of Translarna! It’s been a major fight to get the drug approved, and brilliant that the boys are now starting treatment. ... See MoreSee Less
Six-year-old Luca from Poole has a muscle-wasting disease called Duchenne Muscular Dystrophy. By the time he reaches 12 he will have lost the use of his legs. But a breakthrough drug called Translarna...
"It has given me back independence by enabling me to park closer to most needs. A quick pop to a shop was out of the question before as I couldn't manage the walk from a normal space of parking, to the shop, around and back out. Now with a Blue Badge I can do this."
Peter, who has Charcot-Marie-Tooth disease speaks about his experiences getting a Blue Badge with the support of Muscular Dystrophy UK. Read more and find out how we are able to support you during Charcot-Marie-Tooth disease awareness month >> qoo.ly/b4qrj. ... See MoreSee Less
Charcot-Marie-Tooth Awareness month is ongoing throughout September. Muscular Dystrophy UK has up to date and detailed information about the condition and supports those living with Charcot-Marie-Toot...
We're delighted to be working with SMA Trust to fund further development of SMA Reach UK, a valuable information hub used to improve clinical standards and facilitate clinical trials for SMA.
SMA Reach UK received its initial £300K funding from the SMA Trust. Muscular Dystrophy UK has now joined forces with The SMA Trust to fund the second part of the project, which will cost £218,903 over two years.
Thank you to SMA Trust for producing this video about the grant which you can watch below.
Geoff Major is indeed a fundraising superstar who has taken on the North Pole and the Sahara Desert in the past. Lucky for us he has chosen Muscular Dystrophy UK as one of his lucky charities for his next big challenge.
His challenge next year is aptly named ‘Magnificent 7 UK'. He aims to beat his last incredible fundraising total of £29,000. Geoff would like as many people as possible to join him on his challenge.
Over the past six years, Geoff Major has pushed himself to the limits. Not satisfied with trekking both the Sahara Desert and the North Pole, he is now preparing for the aptly-named ‘Magnificent 7 U...