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Useful Links

FSH – MD Support Group UK are not responsible for the contents of external websites or the suitability of products or advice given.  

UK Links

Muscular Dystrophy Campaign – www.muscular-dystrophy.org

Neuromuscular Centre – www.nmcentre.com

Expert Patient Program – www.expertpatients.co.uk

Treat MND, Neuromuscular Network – www.fshd-group.eu

Direct.gov, Disabled People – www.direct.gov.uk

Carers UK – www.carersuk.org

Equality and Human Rights Commission – www.equalityhumanrights.com

Motability – www.motability.co.uk

Mobilise – www.mobilise.info

Murray’s Muscles – www.murraysmuscles.co.uk

NHS Direct – www.nhsdirect.nhs.uk

Disabled Living Foundation – www.dlf.org.uk

Idependent Living Foundation – www.ilf.org.uk

Genetic Alliance UK – www.geneticalliance.org.uk

Non UK Links

FSH Society (USA) – www.fshsociety.org

FSH Friends – www.fshfriends.org

Fields FSHD and Neuromuscular Centre – www.urmc.rochester.edu

FSHD Europe – groupefsh.free.fr

Muscular Dystrophy Australia – www.mda.org.au

Neuromuscular Disease Centre – neuromuscular.wustl.edu

European Neuromuscular Centre – www.enmc.org

Boston Biomedical Research Institute Paul Wellstone Research Facility – wellstone.bbri.org

Rare Disease Search Engine – www.raredisease.org

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