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Useful Links

UK Links

Muscular Dystrophy UK – www.musculardystrophyuk.org

Neuromuscular Centre – www.nmcentre.com

Neuromuscular Centre – Coventry http://nmc-midlands.co.uk/

Expert Patient Program – www.expertpatients.co.uk

Treat MND, Neuromuscular Network – www.fshd-group.eu

Direct.gov, Disabled People – www.direct.gov.uk

Carers UK – www.carersuk.org

Equality and Human Rights Commission – www.equalityhumanrights.com

Motability – www.motability.co.uk

Mobilise – www.mobilise.org

Murray’s Muscles – www.murraysmuscles.co.uk

NHS Direct – www.nhsdirect.nhs.uk

Disabled Living Foundation – www.dlf.org.uk

Genetic Alliance UK – www.geneticalliance.org.uk

Non UK Links

FSH Society (USA) – www.fshsociety.org

FSH Friends – www.fshfriends.org

Fields FSHD and Neuromuscular Centre – www.urmc.rochester.edu

FSHD Europe – groupefsh.free.fr

Muscular Dystrophy Australia – www.mda.org.au

Neuromuscular Disease Centre – neuromuscular.wustl.edu

European Neuromuscular Centre – www.enmc.org

Rare Disease Search Engine – www.raredisease.org

Evidence-based guideline summary:

Evaluation, diagnosis, and management of facioscapulohumeral muscular dystrophy

Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology and the Practice Issues Review Panel of the American Association of Neuromuscular & Electrodiagnostic Medicine


Exercise advice for those with muscle wasting conditions produced by Muscular Dystrophy UK


FSH – MD Support Group UK are not responsible for the contents of external websites or the suitability of products or advice given.