Permanent link to this article: http://fsh-group.org/?page_id=5
The early beginnings The seeds of the support group were established by Norman and Lorraine Jonas in the 1980′s after their eldest daughter Lisa was diagnosed with FSH-MD in her teens. With no other known members of either Lorraine’s or Norman’s families showing any signs or symptoms of FSH-MD, the diagnosis came as a big shock. At …
Chair-person - Traceyanne Pilato I was diagnosed with FSH-MD when I was 13 but there had been signs for a number of years prior to that. After my diagnosis I joined the MDC and became an active member of our local MD group. I attended one of the first FSH Support Group meetings when I was in …
For general enquiries: FSH-MD Support Group UK C/o Muscular Dystrophy Campaign 61 Southwark Street London SE1 0HL During office hours: 0800 652 6352 (freephone Muscular Dystrophy Campagin info line) Email: fshgroup@hotmail.com We often recieve donations or proceeds from fundraising events which helps us to cover the groups costs. You can also specify that you would like …
