Dr Ros Quinlivan leads the Transition service at Great Ormond Street Hospital and Queen Square, London, which ensures smooth transition for young adults leaving the paediatric service and moving onto the adult neuromuscular service. She is also working to develop the Adult North Star Network, which will improve the standards of care and support available to adults living with Duchenne muscular dystrophy in the UK.
This Friday we will be holding a live Q&A with Dr Quinlivan on our Facebook page between 4-5pm - join us and get your questions answered!
Yesterday marked a significant milestone for mitochondrial disease research - doctors from the New Hope Fertility Center in New York announced that the world's first baby has been born using mitochondrial donation IVF. The doctors carried out the procedure in Mexico, where there are no laws that prohibit it.
Although we welcome the news and are glad that the child is healthy, we want to emphasise the importance of having appropriate controls and ethical regulations for such procedures. The UK is currently the only country in the world to have legalised mitochondrial donation IVF, after years of careful and ethical research carried out by Prof Sir Doug Turnbull and his team at Newcastle University.