Exon-skipping drug, Exondys 51 for Duchenne is now an approved drug in the United States. It could help people like Seth (pictured) whose mutation is amenable to the skipping of exon 51. Today, a new Government commissioned report set out proposals to speed up access to emerging new drugs for children like Seth. Find out more, including what the report's proposals means for people with muscle-wasting conditions >> qoo.ly/bmz4d. ... See MoreSee Less
Well done and thank you to Susan who has become Make Today Counts 2017 100 skydiver. She decided to sign up to this incredible event because her sister and two nephews have Limb Girdle muscular dystrophy. Susan felt that Make Today Count would be a fantastic way to fundraise and to raise awareness. Sign up today and join hundreds of supporters across the UK, like Susan, who will be jumping out of planes for Muscular Dystrophy UK. The early bird offer of just £29 is coming to an end on 30 October, you have just one week to make the most of this incredible offer. >> qoo.ly/bmvnw. ... See MoreSee Less
"I knew it would be a tough personal challenge to complete with my mobility and walking issues BUT wherever I am, I will walk every day."
Bryan Gould, of Stourbridge, West Midlands, has oculopharyngeal muscular dystrophy and has taken on a unique challenge to raise vital funds. He will be walking a distance of 500 miles over 365 days and hopes to raise a whopping £5,000!
Bryan's inspiration for the challenge came not only from the famous Proclaimer's song but from following Martin Hywood's journey, who has raised over £15,000 this year through completing several iconic Move a Mile for Muscles events around the country. Proving that you can get involved with "Moving a Mile for Muscles" any time of the year!
Read more about Bryan's challenge here and how you can support him >>//http://qoo.ly/bm7me. ... See MoreSee Less
In 2013 Muscular Dystrophy UK launched the Bridging the Gap project to improve the healthcare and support that people with muscle-wasting conditions receive.
Thanks to the support of individuals and families as well as health professionals, in three years we have helped secure £3.6 million in new NHS investment in healthcare for people with muscle-wasting conditions and a whole range of new support is available for health professionals and people affected by muscle-wasting conditions. We are continuing to work with the NHS to improve care across the UK.