Muscular Dystrophy UK hosted our first ever family fun and support day at Cadbury World in Birmingham. The event, which was funded by West Midlands charitable trusts for local families, is the first o...
Michael Young has received a surprise letter from the First Minister of Scotland, Nicola Sturgeon.
She’s confirmed the youngster from Falkirk will receive access to Duchenne drug, Translarna on the NHS in Scotland. This will be once his doctor submits an Individual Patient Treatment Request (IPTR). Other children in Scotland who are eligible for the drug can now also expect to have these requests approved.
In it, she confirmed that the youngster from Falkirk will receive access to Duchenne muscular dystrophy drug, Translarna on the NHS in Scotland. This will be once his doctor submits an Individual Pati...
When planning your holidays, do you struggle to find accessible places to stay? Srin Madipalli, corporate lawyer and big-time traveller, had the same frustrations. So he and Martyn Sibley developed Accomable, an online platform for accessible travel. Find out more at Srins workshop at the National Conference in London on 1 October.
Did you know it's taken nearly two years for Duchenne drug Translarna to receive approval in England and Northern Ireland to treat children like Archie? And it's yet to get the green light in Scotland, Wales and the Isle of Man.
It's vital that future drugs for muscle-wasting conditions aren't subject to the same major delays. Please join MDUK's Fast Forward campaign to press for faster approval of emerging treatments. >> qoo.ly/akrwy ... See MoreSee Less