"This short film is amazing and really informative. It’s great to see Ravi as this gives hope for the future to families with a recent diagnosis newly of Duchenne. I wish this had been available when Jack was diagnosed. It was also fantastic to see the varied health professionals explain clearly what they do."
Read about our six new information videos for individuals and families affected by muscle-wasting conditions >> ... See MoreSee Less
"Murray wasn’t diagnosed until seven-and-a-half years old. He lost out on almost four years that he could have been taking steroids which could have given him several extra years on his feet."
The National Screening Committee recommended not to go ahead with a scheme to detect the condition shortly after birth. However, screening can prevent late diagnosis for families like Jane Field and her son Murray. What’s your view on screening? Head over to our website and let us know >> qoo.ly/9ncvh. ... See MoreSee Less
"The meeting was a good place to start a dialogue about some of the challenges we have heard about from ambassadors across the country. Concerns begin from eligibility to assessment and go onto who is responsible for payment."
Trailblazers had the chance to quiz a policy lead from Access to Work on concerns over a variety of issues such as the assessment process and payment. This comes after Trailblazers from across the cou...
There are many questions that need to be answered regarding the implications of the EU Referendum and what this means for Muscular Dystrophy UK and our fight to accelerate treatments and ultimately cures for muscular dystrophy and related conditions.
We will continue to put the interests of people living with muscular dystrophy and related conditions first during what is likely to be a period of uncertainty.