Thank you to HRH The Duke of Edinburgh who hosted a wonderful evening at St James’ Palace yesterday. He met many of our supporters, including 42-year-old Paul Mace (pictured) who has Duchenne muscular dystrophy. Celebrating 50 years as our Royal Patron, His Royal Highness brought warmth and laughter around the room as he circulated with supporters of the charity. We would like to thank The British Monạrchy for a truly special night. ... See MoreSee Less
There are still places available in the world’s biggest and most prestigious half-marathon: the Great North Run. Join #TeamOrange on Sunday 11 September and be one of the 57,000 + people taking to the streets at the Tyne.
We’ll give you dedicated support, a fantastic running pack, and a post-race reception, with the opportunity for a much-needed massage!
Researchers at the University of Edinburgh have discovered that nuclear membrane proteins play a role in the development of the muscles in the body. These findings help give a better understanding of what is going wrong in muscular dystrophies where the nuclear membrane is affected, such as Emery-Dreifuss muscular dystrophy and some limb girdle muscular dystrophies. This knowledge is important for the development of future treatments.
"We are delighted that the Minister took the time to meet with us and discuss key challenges within Trailblazers’ 'End of the Line' report. There is still so much to be done to improve access across the country. This should not just focus on the physical access, but also to improve attitudes on the ground with all modes of public transport."
Muscular Dystrophy UK's Trailblazers met with Transport Minister, Andrew Jones, this week. The meeting gave Trailblazers the opportunity to highlight issues that had been raised in the recent report on young disabled people's access into public transport >> qoo.ly/9qmzj. ... See MoreSee Less