Amazing! Michael’s petition to the First Minister of Scotland asking for her help in getting Duchenne drug, Translarna, on the NHS is now at 50,000 signatures! Please sign and share today to take the number even higher and keep up the pressure. chn.ge/1qJJWof. ... See MoreSee Less
Sunday 24 April was a significant day for the near 40,000 people who took to the streets of the capital for the Virgin London Marathon. Any runner you ask will say the special thing about this event ...
I have heard that boys in England have been told they will be able to get Translarna. I am very happy for them, but me and my friends in Scotland still cannot have the drug on the NHS. Please please help boys in Scotland get Translarna."
Please get behind Michael’s petition to the First Minister of Scotland, Nicola Sturgeon. Although Duchenne drug, Translarna, is being recommended for NHS funding in England, children in Scotland are facing uncertainty after the Scottish Medicines Consortium refused to approve the treatment for funding. Get involved, and sign Michael’s petition. qoo.ly/8tws3. ... See MoreSee Less
My name is Michael. I am 9 years old, I live in Falkirk and I have Duchenne muscular dystrophy. There is a new medicine called Translarna which I get as part of a drugs trial. Translarna keeps me well...
“Before contacting Muscular Dystrophy UK, I had a lot of unanswered questions and felt isolated. Through becoming a peer support volunteer, I hope to use my experiences to support others.”
Hannah, who has rigid spine syndrome, is one of the newly-trained peer support volunteers in Wales. Along with Stephen, Anola and Michelle who also received training in Wales last week; the peer support volunteers are here to support you. Get in touch: ... See MoreSee Less