Today we are pleased to announce our investment of over £4.5million into five new transformational commitments. These projects will give you choices - to live a life unlimited, understood and never alone.
We believe our five-year investments will make a profound impact on lives, from the moment of diagnosis, improving quality of life, while also seeking to extend them.
Together, we can beat muscle-wasting conditions through accelerating research, driving access to the best of healthcare and enabling independence. Because everyone has the right to live their life to the fullest.
Visit our website to find out about each project, and to watch some videos too.
1. Oxford Translational Research Centre: we're investing in a multi-million pound centre to change the landscape for clinical trial capacity in the UK.
2. We're investing £1.6m into UNITE-DMD, a trial to evaluate the safety of gene therapy for muscle-wasting conditions. To date, no such trials have taken place in the UK.
3. Our investment of £1.45m will enable treatments through data sharing, by boosting the world's largest natural history study, known as the NorthStar programme.
4. Here for you: Mental health matters. In this new commitment, we're driving change for access to psychological care and support from the moment of diagnosis to end-of-life.
5. Here for you: Clinic support. We're investing over £550k to support you on any practical or financial issues, working alongside healthcare professionals in clinics. ... See MoreSee Less
"People with MD feel the cold, particularly in their extremities. So why did I want to go to one of the most extreme, cold and inaccessible places on Earth? I wanted to be master of my own destiny, so I had to recognise my strengths and play to my weaknesses. The way I'm wired is to set the task and say, “We're going to make this happen", and what I wanted to make happen was a trip to the north and south pole."
Michael McGrath speaks to The Guardian about how his diagnosis of limb girdle muscular dystrophy inspired him to make fundraising expeditions to the north and south pole.
Only one more match to go in the Muscular Dystrophy UK Championship and the St Georges Knights are ruling the top of the table. Our wonderful championship pundit Kai Gill, Captain of the East Riding Eclectic Eels, has written a special report on what was a table defining fourth round. Big thank you to Kai for the fantastic sum up of what happened on the court last weekend in this nail biting penultimate round. >> bit.ly/2n4mb9v... See MoreSee Less