Do you have a disability? Do you agree that it is confusing for disabled people to know who they can ask for care? Please let us know your thoughts. ... See MoreSee Less
"There is so much focus on us living longer lives, but if we don't have the right care, and if nobody is accountable, then what is the point?"
Vivek discusses the latest All Party Parliamentary Group...
Yesterday, Portsmouth Great South Run saw 12 incredible #teamorange runners tackle 10 miles for Muscular Dystrophy UK! The individual runners have so far raised a staggering £6625 altogether to drive forward research in muscle wasting conditions for their loved ones. Thank you Andrew Kingsmell, Daniel Upfield, Lyndsay Lofthouse, Aliesha Hollis, Clare Kirby, Toni Charlick, Sara Woodley, Kelly Atkinson, Sian Rixon, Frank Enninful, Judith Connolly-Burnett, Rachel Gee and Ben Parry –you are all amazing! ... See MoreSee Less
Exon-skipping drug, Exondys 51 for Duchenne is now an approved drug in the United States. It could help people like Seth (pictured) whose mutation is amenable to the skipping of exon 51. Today, a new Government commissioned report set out proposals to speed up access to emerging new drugs for children like Seth. Find out more, including what the report's proposals means for people with muscle-wasting conditions >> qoo.ly/bmz4d. ... See MoreSee Less
Well done and thank you to Susan who has become Make Today Counts 2017 100 skydiver. She decided to sign up to this incredible event because her sister and two nephews have Limb Girdle muscular dystrophy. Susan felt that Make Today Count would be a fantastic way to fundraise and to raise awareness. Sign up today and join hundreds of supporters across the UK, like Susan, who will be jumping out of planes for Muscular Dystrophy UK. The early bird offer of just £29 is coming to an end on 30 October, you have just one week to make the most of this incredible offer. >> qoo.ly/bmvnw. ... See MoreSee Less