Are you attending Muscular Dystrophy UK's National Conference on Saturday? Did you know Trailblazers will be hosting their own young persons' conference alongside?
If you are or are attending with a young person aged 16-35 who has a muscle wasting condition, then make sure you check out the conference. More details can be found here >> qoo.ly/b39bu. ... See MoreSee Less
Muscular Dystrophy UK has been shortlisted to become one of the Bank of England charities of the year. This is now down to staff vote. If you are a Bank of England employee please vote for Muscular Dystrophy UK and help us raising awareness and much needed funding to win our fight against muscular dystrophy and related neuromuscular conditions. Please share if you know anybody that can help.
Today marks the start of SMA Awareness Week. Find out about all the ways you can get involved in the week by visiting our dedicated page: bit.ly/2cX8xQU
To kick start the activities, we are launching a new information video featuring Dr Ros Quinlivan, a specialist consultant neurologist, Marion Main a paediatric physiotherapist from GOSH and James Lee who has SMA type 3.
This video gives a medical overview of Spinal Muscular Atrophy types 1, 2 and 3, giving information about diagnosis and ongoing care and treatments available. It also features information on the support MDUK offer people with SMA.
Earlier this year we shared the wonderful news that our Vice President, Professor Sir Doug Turnbull, had been awarded a knighthood for leading the development of mitochondrial donation IVF. It is your generous support and fundraising that enabled us to fund his early research to develop this technology.
Watch this video, where Professor Sir Doug Turnbull talks about mitochondrial donation IVF and explains how this pioneering technology works. ... See MoreSee Less
Tomorrow marks the start of SMA Awareness Week! SMA affects over 2,000 children and adults in the UK. Over the coming week we will bring you supporter's stories, a short film about diagnosis, care and much more.
Please share the inforgraphic to help spread awareness.