“There is a drug called Eteplirsen that could keep my muscles stronger for longer. Please help us campaign and get the drug approved.”
It was announced this week that the US Food and Drug Administration has put back its decision on approval for Duchenne drug, Eteplirsen, a treatment which could help children like 12-year old James Barr. Get further news here >> qoo.ly/99jb8. ... See MoreSee Less
May I share a new resource that's making a profound difference in the lives of children and adults who have difficulty holding utensils, writing implements, toys and more! Thank You eazyhold.com facebook.com/eazyhold ... See MoreSee Less
Eating food from around Europe while raising money for Muscular Dystrophy UK - we can't think of anything better! This week, we visited Germany for our Brexit Brunch and it was a bit of a mixed bag when it came to the voting but it looks like we're still IN! Next week, it's Greece's turn to tempt our tastebuds... ... See MoreSee Less
"I quickly got my phone out and downloaded the Uber app. As it was downloading, I thought to myself that at last, disabled people finally have access to one of the most popular private taxi firms in the UK; a long overdue move."
Ravi Mehta has written a blog on his first journey using the brand new UberWAV. Find out how the experience went >> qoo.ly/997iu. ... See MoreSee Less
"Pacing yourself is important for everyone but particularly for students with disabilities."
Are you currently studying for exams? Kate Snape, who is 20 and has spinal muscular atrophy, is one of our Trailblazers. She is in her second year of studying for her degree in Biological Sciences, and has taken the time to share her 5 top tips for coping with exams!
Trailblazer Kate Snape is in her second year of studying for her degree in Biological Sciences at the University of East Anglia. She took some time out of her studies to share her top 5 tips for stud...