"I think newborn screening for Duchenne should go ahead. It’s in the best interests for the boys. Early treatment could prolong their mobility and keep them functioning for longer.”
Penny’s son, Dan, has Duchenne and she recently took part in our Duchenne Dialogue on newborn screening. Missed the chat? You can still catch up over at our website >> qoo.ly/a6jiy. ... See MoreSee Less
“Trying to keep the kids entertained throughout the summer is difficult for most parents but when you have a child with mobility difficulties it’s an extra worry to make sure that any day trips are suitable.
I’m really pleased that Muscular Dystrophy UK is giving families in the West Midlands the chance to meet up with each other like this. It’s reassuring to know that we can have a fun day out and get to meet other local families like us at the same time”
Jaspal Mann (quote and pictured) is attending our free family fun and support day in the West Midlands with her son Kirath who has Duchenne Muscular Dystrophy. Have you got your tickets yet? Tickets are going fast so contact us today to secure your place!
Sign up to run in our Cambridge Town and Gown 10K this year and you'll have the opportunity to purchase one of these wonderful orange cap and mortarboard sets. We’ve partnered with Ashington Ashington Gowns who will donate £5 of every cap and gown sale to Muscular Dystrophy UK. We would love to see as many of our Cambridge Town and Gown 10k runners as possible in orange this year so this is the perfect outfit! Get yours today >> bit.ly/2addmlI. ... See MoreSee Less