“Parallel London was an event that Bertie could be at the heart of and also one in which his disability would be normalised as just one of many. As a parent of a child with muscular dystrophy, it was also very empowering to do this with Bertie as a team."
Alison Kay is the mother of Bertie, who was diagnosed with Ullrich congenital muscular dystrophy in 2014, at two-years-old. Together, they fundraised by taking part in Parallel London and raised an incredible £1,356 towards research.
Do you want to try out a new sport? Muscular Dystrophy UK is offering a free sports taster day for families and young people who have a muscle-wasting condition.
The day is on 8 April from 12:30pm to 4:00pm in Oldbury near Birmingham and all families are welcome! Siblings can join in too and adults can even get some complimentary therapies like massages and reflexology.
The third West Midlands family fun and support day has been planned for 8th April in Oldbury. The 'Sports Day' will give families the chance to try different accessible sports as well as meet each oth...
"I always tell my date a little bit about my physical limitations just in case I do need help. However, I've also become a master at learning what I can (pretty much) always do without assistance." Lauren
Last week, members of Muscular Dystrophy UK's Trailblazers wrote blogs on a variety of topics on dating and relationships to mark Valentine's week. Here's one that provides some tips and suggestions on where to go on a first date.