Category Archive: What’s Happening

Newsletter 24

Our most recent newsletter is now available to download.  

Permanent link to this article: http://fsh-group.org/?p=1061

FSH Summer Get Together 2014

Click Here for the Booking Form

Permanent link to this article: http://fsh-group.org/?p=1041

Chris Finister’s Marathon Run

As you may or not be aware, Christopher Finister (partner to Liz Williams, Chair FSH-MD Support Group UK) is running the London Marathon this year on 13 April 2014 to raise funds for the Action on FSH Campaign for the Muscular Dystrophy Campaign. This money is key to keeping the FSH Registry and fund ongoing …

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Permanent link to this article: http://fsh-group.org/?p=1017

The National MDC Conference 2013

This was my first time at the Muscular Dystrophy Campaign National Conference and I have to say I thoroughly enjoyed my day. We had a stand for the FSH-MD Support Group UK, and we met many people, old friends and new and the support was really encouraging so thank you for taking the time to …

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Permanent link to this article: http://fsh-group.org/?p=1001

Action FSH Appeal

The FSH-MD Support Group UK has joined forces with the Muscular Dystrophy Campaign to help raise funds for the Action FSH Appeal. The Target is £45,000; we as a group are hoping to raise £10,000 in the next twelve months. We’re asking our members to help us by perhaps organizing a fundraising event or donating …

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Permanent link to this article: http://fsh-group.org/?p=937

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