Category Archive: What’s Happening

Chris Finister’s Marathon Run

As you may or not be aware, Christopher Finister (partner to Liz Williams, Chair FSH-MD Support Group UK) is running the London Marathon this year on 13 April 2014 to raise funds for the Action on FSH Campaign for the Muscular Dystrophy Campaign. This money is key to keeping the FSH Registry and fund ongoing …

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Permanent link to this article: http://fsh-group.org/?p=1017

The National MDC Conference 2013

This was my first time at the Muscular Dystrophy Campaign National Conference and I have to say I thoroughly enjoyed my day. We had a stand for the FSH-MD Support Group UK, and we met many people, old friends and new and the support was really encouraging so thank you for taking the time to …

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Permanent link to this article: http://fsh-group.org/?p=1001

Action FSH Appeal

The FSH-MD Support Group UK has joined forces with the Muscular Dystrophy Campaign to help raise funds for the Action FSH Appeal. The Target is £45,000; we as a group are hoping to raise £10,000 in the next twelve months. We’re asking our members to help us by perhaps organizing a fundraising event or donating …

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Permanent link to this article: http://fsh-group.org/?p=937

Upcoming Events

For more information and to book your place, please contact Lyn Inman at lyni@muscular-dystrophy.org or call 01132 301 313. http://www.disabledliving.co.uk/Kidz/North 21st November 2013 http://www.disabledliving.co.uk/Kidz/Middle 27th March 2014 http://www.disabledliving.co.uk/Kidz/South 12th June 2014 http://www.naidex.co.uk/ For the 2014 dates

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11th May 2013 for a FSH Information Day

Join us on the 11th May 2013 for a FSH Information Day for patients and families living with FSH, organised by the FSH-MD Support Group UK and the Muscular Dystrophy Campaign. This will be an opportunity to hear the latest updates in research, diagnosis and management of the condition from expert clinicians and researchers. Our …

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Permanent link to this article: http://fsh-group.org/?p=674

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